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Joined 1 year ago
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Cake day: August 5th, 2023

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  • I’m immunocompromised and still mask indoors. I haven’t been sick at all since 2020 and it’s awesome! Between 40-60% of people have some form of permanent brain damage and 70-80% have long covid problems from Covid. The damage to the body compounds every time a person gest re-infected, so the numbers are terrifyingly high.

    I have a postmortem science degree and it required 4 years of pre-med/pathology. With all that and what we know about the virus, I am honestly not sure I’ll stop wearing a mask indoors until we find a cure or better vaccine. I can’t stand that politicians are trying to ban masks, essentially sacrificing the elderly, disabled, and ill. A government making medical decisions, creating an environment where a person can’t mask up, regardless of if they have cancer and want to stay safe; or if they’re severely sick with something else but need to pick up medication at a pharmacy… it’s dark. It’s fucked up




  • Sewing machines. I’m a professional cosplayer and sewing/embroidering is a big part of that. My newest machine is from 2008. After that, they started adding in all these different electronic features, that are garbage. The machines both break easily and are limited to the technology/software of that time. You want a machine that can sew through leather and silk with the same grace, get an older machine. If you want something newer, avoid electronics or anything with a touchscreen.

    My Husqvarna Viking Emerald 118 is so strong that when sewing corsets, my needle commonly punches through the thick ZipTies, that I use for boning, like they were butter. It’s a beast of a machine. If she ever breaks, I’m going to find a used one.


  • Ouch! I’m so sorry!

    For the bending backwards scale on the knees and elbows, anything past 180° counts. My knees and elbows curve back pretty far. The more severe the degree, the more severe the EDS, normally. Also, get checked for Cardiac EDS. It’s the most deadly. It’s basically EDS for veins and arteries. EDS also leads to the conditions where POTS forms and that’s its own can of worms


  • You’re in luck! I volunteer as a Disability advocate for EDS and Rising Voices of Narcolepsy.There’s a test for EDS called the Beighton Scale. If you have all 9, it’s a guarantee for the hypermobile type of it called hEDS. Even if you’ve got 5-6 on the scale, you probably have it. 9 is the worst, what I have. I’ve needed multiple surgeries and was designated as fully disabled by a judge in my early 20s.

    Having answers brings peace of mind, but what’s even more important is that your treatments will change. People with Ehlers Danlos Syndrome ABSOLUTELY CANNOT use the antibiotics in the Cipro family. It causes vein collapse, circulatory system leakage, and aortic aneurysms. It can kill you. You also can’t do most stretches, so Yoga is a no go and physical therapy can only focus on strengthening your injured areas.

    Here’s the test. Hope it helps!

    https://www.ehlers-danlos.com/assessing-joint-hypermobility/


  • Yup! Ehlers Danlos Syndrome is a BITCH. I was diagnosed in 2014 and I wish I could go back in time and scream at younger Shelby to quit gymnastics, quit cheerleading, and quit my job as a contortionist… on the outside, I look healthy and even do boudoir for a living, but my doctor says my ligaments are similar to someone in their late seventies. It’s hard when you look “normal” because everyone assumes you’re faking it.













  • Mass extinction events have a cause. The Permian/Triassic one I mentioned, is generally agreed to be from unusual movement of earth’s crust, creating severe volcanic activity. The eruptions caused CO2 and pollution, meaning greenhouse gasses built up. The heat shifted water currents and the temperatures, mixed with acid rain, decimated life in the oceans.

    Humans are basically the volcanoes in modern times. Yes, the earth goes through normal changes, but these temperatures are increasing at a speed that, to my knowledge, has never happened. There is a way of teaching kids about how long the earth’s had life, that visualizes it pretty well. If all of earth’s history were to fit on your arm, shoulder to fingertips, if you gently scratched your fingernail on something rough, you’d erase all of humankind. We have barely existed on earth, but are throwing it off balance like never before. (With the exception of the meteor that killed the dinosaurs, but that’s a whole other tangent)

    Having taken years of pathology/physiology classes, it really feels like the earth is a body, and it’s getting a fever to try and deal with an illness… us.

    Lmk if you need any sources. I can’t exactly copy my books or the ones from my old college’s libraries, but there’s plenty of studies/resources out there if you’re nerdy enough to dig 😊 (fossil pun)!